Attention Autism: a strange piece of writing about schools (special and not), Open Floor and Thoracic Ring Approach, sharks, love, trust, process and not having a conclusion yet

All this year I’m dancing one Saturday a month in a special school. As soon as I walk through the door, something about being here allows me to exhale. In the classroom where I got changed yesterday, there was an A4 print-out from Attention Autism tacked up on a cupboard. (I googled Attention Autism this morning and discovered the rather wonderful Gina Davies, a speech and language therapist who offers training to carers and professionals working with autistic children.) The A4 in the classroom was a series of reminders for group leaders about how to be with an autistic child – don’t insist on eye contact, if you want focus make sure there’s no background noise … The special school is the only environment I’ve ever been in where my presence as an autistic person is overtly acknowledged. Everywhere else, if I wanted to be taken into account, I’ve had to explain who and what I am and advocate for my difference. It’s as if in the special school I could just settle. Just breathe and settle.

I’m in two ongoing processes at present. One is the year-long Open Floor group which is dancing in the special school’s hall and is facilitated by Sue Rickards. We’re focusing on wishes, hopes and dreams, or at least it says so on the tin. The focus that’s emerging for me is just being, which could be, in a way, the anithesis of a wish / hope / dream: not the leap to somewhere else but what’s right here, right now. It’s a softening, a dissolving; subtly tuning in, accepting, trusting.

Yesterday morning, the invitation was to do something differently, so in the hot middle of things, I left the dancefloor and made a cup of tea. I am not someone who just leaves in the hot middle and makes a cup of tea. Or, at any rate, I have not been that person. Then I came back in and sat in a chair. Sat in a chair, for god’s sake! Sat in it. For the rest of the dance. Radical acts! It wasn’t an old fuck-you!; it was a new attention to the quiet impulses of my body and a readiness to respond to them through simple actions. And at the end of it all, I arrived in a kind of embodied presence I don’t think I’ve ever experienced before: full, unsheltered, without pulling or distortion, expansive and at rest.

I have outlawed so many parts of myself. In 1968, when I started school, autism wasn’t yet a thing. It existed, of course; autism has always existed; but there was no language for it. When you belong to a neuro-minority and you’re five, and you have no words to articulate your experience or to understand your difficulties, or visible forerunners to be that thing that you are in such a way that you know it’s more, so much more, than just OK … how do you make it tenable? How do you survive?

My response essentially was to shut myself down. I stopped eating. I rarely spoke. I suppressed my own information to the point where I was no longer even receiving it myself. I created an alternative structure, which I hoped made me look sufficiently like one of ‘them’ to avoid being eaten by the sharks. I lived and breathed like a cartoon shadow two inches outside and above myself.

This kind of displacement of self from the stream of impulse happens in a physical body, in myofascia and bones. Which brings me to Darren and Thoracic Ring Approach, the other process I’m involved in at present. We’re focusing on unwinding my ribcage. In a sense, though, it isn’t another process so much as a different emergence of the same one.

Thoracic Ring Approach sometimes seems to me to be a bit like horse whispering, or maybe it’s that Darren is a whisperer – a whisperer of ribs – I don’t know. Anyway, it’s a very subtle physical manipulation, so subtle that it seems to be at least equally neurological suggestion. As I understand it, underlying the less functional adaptive patterns in my body are older and more synergistic ones. Thoracic Ring Approach feels like slowly waking up to the original synergy. Because adaptive patterns are formed around experience, this must also be a somatic process – waking up to myofascial synergy catalyses waking up to behavioural synergy (and vice versa) – and a cathartic process, involving the re-emergence, sifting and integration of memory and the feeling and release of emotion. It devolves from body, but it’s a series of tiny and far-reaching shifts and recalibrations resonating through a whole person.

I spent a lot of my childhood being a horse. I didn’t relate to human beings very much at all, and for a while I insisted on eating from a bowl on the floor. (Children, if you want to freak out an adult, pick up your food with your mouth: it really, really disturbs them.) It wasn’t until some time in my forties, perhaps, that I fell in love with people. It happened through moving and experiencing the congruencies that arise in moving-with. It happened through touch: that thing with feathers, granules, veins. I had to learn outside social contexts, because social contexts were alien to me and only made me feel more dislocated from my real experience. I learnt to trust human beings, and I am very grateful for it, always. Because I learnt through my body senses, I’ve acquired – I think – the most reliable kind of guage of who to trust and who not, and so far I’ve never got it wrong.

Partly I wrote this article because I want to name the people who are currently holding transformative spaces for me. It’s a big-small thing we can do for each other; it’s a sacred task and it’s also very ordinary and human; and I’m extremely grateful that there are people with the capacity to do it for me. I want to name those people and I also want to acknowledge the level of trust that’s involved in relationship becoming transformative in this way. So, here goes: diving off the high board …

Gratitudes and acknowledgements
I’ve known Sue for about fourteen years now. In that time she’s been lots of things, not least a foremost ally for me in the reclamation of outlawed places. More than once I’ve been on the dance floor doing something that never appeared on the instruction sheet, some part of me doubting whether this can possibly be allowed to happen or whether the sharks are already stirring behind the rocks, and I hear Sue’s voice in my ear: ‘Trust it, Jess.’ I love you, Sue.

In a way, what I love about Darren (and actually I love a lot of things about Darren) is just that he’s willing to work with me, even though – and actually because – I’m super-complicated. I love that he keeps holding the box and doesn’t try too hard to veto poetic licence, that I always feel listened to and never coerced (which isn’t all that usual in my experience of physiotherapy), that what we’re engaged in feels like a collaborative exploration on the edge of what’s known. I always have the sense that if we both pushed at the same time, neither of us would fall over. I think that’s a measure of right relationship. Thank you, Darren.

All you need is love Afterword
It’s Tuesday. I’ve had this cold since right after the last lot of thoracic ring re-aligning, and I can’t shake it. I’m struggling to embody what’s pressing through to the surface. I want to collapse. I know what I need to do in my body, and physically I can do it, but somewhere else the horse is refusing the fence. I feel overwhelmed and submerged, and I hate being in this place. It’s sticky and uncomfortable, like wool against the skin. I don’t have much perspective and I definitely don’t have a conclusion.

Every time I write, I know in one atavistic part of me that that I have surely infringed several strange and unfathomable rules of neurotypical conduct and that I am therefore forever beyond the pale ­– but more compelling is the urge for self-exposure. I’d be burnt at the stake for it just because I couldn’t help it. I feel suffocated within the bounds of what’s speakable within neuro-normative culture. I know, too, that the places where we feel most unacceptable are the also the ones where we can potentially be most loved and that if we don’t expose them, we remain essentially invisible and unformed. So even though it feels like waving a bloodied rag at the sharks, I keep on speaking.

Image by Kenneth Geiger ©.

5 thoughts on “Attention Autism: a strange piece of writing about schools (special and not), Open Floor and Thoracic Ring Approach, sharks, love, trust, process and not having a conclusion yet

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